I Hurt because I Don’t Know How to Fix Things


Ever since you arrived, I’ve had conflicting emotions between you and your Brother. I’m desperate to preserve his childhood, I watch him grow so swiftly that I want to pin him down and clutch on to his baby demeanour for as long as I physically can.
You, on the other hand, I’ve pressurised to grow.
Knowing you’ll be my last child, a part of me has passionately savoured the lengthy wait between each development. You’ve been my baby forever and I need you to know how much I’ve appreciated that. But still, I will you to grow.
The hardest part of your disability for me is the ‘not knowing’. We knew from birth that your brain bleed would leave permanent damage – it wasn’t until you turned 17 months that we learnt the extent of the trauma. 17 months of anxiety and doubt. I thought that once we had confirmation of the cause of your slow progress, I’d magnificently feel better but now knowing you have cerebral palsy leaves us with a new extent of uncertainty. 


There’s every real chance that we’ll never see you walk unaided, never watch you dance your 1st dance at your wedding, your Father may never be able to walk you down the aisle. This kills me! Especially because we’ll never know you won’t do this until you don’t. 
There’s a million moments each day which take me by surprise – I can look out the window at our neighbouring children chasing butterflies, with that wild tenacity young children have, and feel paralysed with dread that I may never be watching you join them. I can load up social media and see videos of children much younger than you climb slides or take their first step and feel sick to the pit of my gut that I may never share those moments for you. After all, it’s not for me that I want these opportunities – it’s very much for you.


You’re growing more mature now, you’ve started to realise you can’t join in. I see the frustration in your eyes, feel your heart ache with every glistening tear which rolls down your cheek. I spot the desperation in your mind to fit in, I watch you idolise other children, admiring their movements and itchy to copy. It’s that same will and desire which makes me feel more at ease.
You’re too determined to give in. You’re too strong to not conquer your hardships. 
More than ever, I’ve seen you transform recently. Our latest holiday was almost a catalyst for your growth – you decided to join the world of toddlerhood. Each night, the music would begin and your legs would spontaneously thrash out shapes, not too dissimilar to dance moves. Your arms would join in and your smile would radiate the space around you. Your laughter was infectious, captivating. You squealed until we took you to the dance floor, broke down if we tried to remove you from the fun. 


It was both mesmerising and incredibly hard in equal measures. Mesmerising because I’ve wished you to grow for so long that I almost couldn’t believe I was watching you do it! Hard because you harboured so much frustration and resentment at the lack of your own ability. Each night began with your untamed laughter but ended with your violent cries. 
This is why I will you to grow. 
As your Mother, I’ll always want you to succeed in everything your heart desires. I can’t handle listening to you scream because you want to run with your Brother. I can’t handle trying to settle you because you want to dance independently. Each head-but, each bite is confirmation as to how much you’re hurting. You thrash outwardly to make us identify with your pain. The thing is Dolly, I already feel it just as strongly as you do.
I hurt so much. I hurt because I don’t know how to fix things, don’t know how to get you to where you want to be.


All I can do is cuddle you, let you air your frustration and encourage you to succeed…even if this means picking you up after every single fail.
I’m proud to see you toddle, so grateful for the progress I see you make. You’re no longer my baby and I promise I won’t treat you as one, I won’t hold you back in ways that may be harmful to your development.
Together, we’ll do this. Together, we’ll make sure you have your moments…but if, somehow, we can’t – please remember that I’ll never ever give up on you. I’ve said before that I’ll carry you forever. If there ever comes a time I can’t carry you any longer, I’ll do whatever it takes to make sure you still succeed in everything your heart desires. I’ll push you, I’ll guide you, I’ll always support you.

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2 thoughts on “I Hurt because I Don’t Know How to Fix Things

  1. I read this like a lot I’m sure, with tears in my eyes… I identify with your words. As I’m reading this my little boy has just gone out with his friends to do boys stuff to celebrate his birthday…. All is happy on the outside but on the inside it hurts because none of us know how many more birthdays he has…it takes a strong mum to deal with that thought and I can tell in your words that your lovely children have a strong mummy too. I just wanted to send you a hug really and tell you that in my little humble opinion, I think you’re doing great. Stay strong and take care.
    Crystal x

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    1. Thanks Crystal, it really means so much to hear kind words like that – especially from a strong Mother like yourself. I send you hugs too and pray you have many more Birthdays with your son to celebrate x

      Like

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